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Africa Foundation For Ectodermal Dysplasia Meet, Greet Hangout Holds In Lagos October 5

The Africa Foundation for Ectodermal Dyplasia (AFED) is a child of necessity, she was borne a time when the world over especially those in the Africa spectrum needed to sit down and have a conversation  about the rare genetic condition called ECTODERMAL DYSPLASIA characterised by a reduce ability to sweat, missing teeth, cleft lips, large forehead and learning disabilities and the imminent challenges for people living with the condition in the continent.

Through the advocacy we seek to connect with Ectodermal Dysplasia families in Nigeria and Africa who want to meet others, discuss issues and post news about recent researches  and developments and we can leverage on it to suit our African clime which is tropical in nature and people living with the condition suffer most in the dry seasons.

Our first ever meet and greet is aimed at meeting families of those living with the condition, volunteers and advocates for the first time (outside the Social media space) and chart a way forward for the foundation.

We are also poised to  educate, sensitize and officially create zones where people can operate from their home states and countries talking  about ECTODERMA DYSPLASIA until it becomes a topic Worthy of a national debate. 

We will also meet those living experience, how people living with the condition  socialise and channel ways to get feedback as we move along.

So far,  we have Recorded significant figures, that is why we can't wait to have you join our community.

The event will be holding in the heart of Lagos on the 5th of October, 2019 at 10am prompt.

Idara Udoh,
Founder - Africa foundation for Ectodermal Dysplasia - AFED.

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